A Transplant Recipient and Her Donor Share a Deep, Long-Standing Connection

Several years ago, Christine Rutigliano鈥檚 manicurist noticed that her 肠耻蝉迟辞尘别谤鈥檚 eyes looked yellowa sure sign of liver disease. Christine, a New York City native who lives near Albany, knew she needed to see a doctor but wasn鈥檛 sure where to go for diagnosis and treatment.

A childhood memory provided the answer.

Long ago, when she was 6 months old, a young doctor at New York Hospital鈥NewYork-Presbyterian Hospital鈥檚 predecessor鈥攕aved her life.

My whole extended family made the trek from Queens to Manhattan,鈥 says Chrissie (her longtime nickname). An attending physician at NewYork-Presbyterian diagnosed the child with pneumonia, and after a brief hospital stay, she was cured.

Recalling that incident decades later, Chrissie knew exactly where to go to get the help she needed.

A recent emergency appendectomy followed by a bout of unaccustomed back pain pointed toward what ailed her. But when Dr. Robert Brown, Vincent Astor Distinguished Professor of Medicine and Chief of the Division of Gastroenterology and Hepatology at 五月天视频, told her she鈥檇 need a liver transplant, she could barely take in what he was saying.

At the time, she was full of energy, able to function well at work, at home and in the community. She wasn鈥檛 sick. A liver transplant? That was for people with all-out liver failure; people who had run out of options, she thought.

In fact, Chrissie鈥檚 liver was failing. She was diagnosed with primary biliary cirrhosis. But she wasn鈥檛 sick enough to receive a liver from a deceased donor in a timely fashion. Her best option would be a living donor, Dr. Brown said.

A liver transplant from a living donor involves the surgical removal of a portion of the donor鈥檚 liver and its placement into the person whose liver is no longer viable. The donor鈥檚 liver grows back to its normal size, usually within a year.

To get adequate priority on the national registry list for a deceased donor鈥檚 liver, you need to be extremely ill, says Dr. Benjamin Samstein, Chief of Liver Transplantation and Hepatobiliary Surgery, Professor of Surgery and Surgical Director of the Living Donor Liver Transplant Program at 五月天视频. 鈥That makes sense, given the relative shortage of organs from deceased donors,鈥 he explains. He seconded Dr. Brown鈥檚 recommendation: A living donor would be the best way to go.

Who would be willing to donate a body part to me?鈥 Chrissie wondered. No fewer than 8 family members volunteered for the task, but a non-blood relation leapfrogged over all of them. Her name is Paige Oberle.

Bonded through love and loss

鈥淚 didn鈥檛 think twice about donating part of my liver to Chrissie,鈥 Paige says. 鈥淚f someone important in your life needs your help, 颈迟鈥檚 totally worth i迟.鈥

Paige鈥檚 mother passed away when she was only 12 years old. Chrissie was Paige鈥檚 mom鈥檚 best friend.

After Paige lost her mom and Chrissie was forced to say goodbye to her dearest friend, the two became close, and over time their relationship blossomed. 鈥淐hrissie helped keep the memory of my mom alive. We鈥檇 talk about her a lot, but we also grew our own relationship.

鈥淲hen people ask me about the unique bond I share with Chrissie, 颈迟鈥檚 impossible to explain,鈥 Paige continues. 鈥Each of us is part of the other鈥檚 family. My mom left us each other.鈥

This April, Paige got married. Of course, Chrissie was there at every step, helping her unofficial daughter plan the wedding and rejoicing in this major milestone in Paige鈥檚 life.

A multi-pronged process

鈥淭ransplant surgery is the centerpiece of a much larger process,鈥 says Dr. Samstein.鈥淲e have a holistic way of looking at people, which is why our team includes experts across so many areas of care,鈥 including:

  • Rehabilitation medicine
  • Psychology
  • Nutrition
  • Social work
  • Financial counseling

Chrissie and Paige interacted with the transplant team well before their respective procedures, which took place in June 2019. And as with all organ donors and recipients, the two were kept completely separate to avoid bias and protect their privacy.

Everyday heroism

Paige, a former pediatric nurse practitioner, says it was enlightening to be a patient for the first time in her life.听

鈥淏ecause of my professional background, I knew what I was getting myself into,鈥 she says. 鈥淚 also knew that my liver would grow back.鈥

However, that took a lot of energy. 鈥淲e removed 1 to 2 pounds of Paige鈥檚 liver,鈥 Dr. Samstein says. 鈥淩egrowing a liver causes significant fatigue, typically lasting for 3 months.鈥 That time frame matched Paige鈥檚 experience precisely. She was in her mid-20s with no known health problems. She had every reason to believe that everything would go well. And it did.

鈥淭hanks to my training, and to all the support I received at Weill Cornell, I was as mentally prepared as 颈迟鈥檚 possible to be,鈥 she says. 鈥淏ut it was still hard afterwards. I needed a lot of help. Even taking a shower was a big deal.鈥

Still, Paige feels that she got off easy compared to Chrissie. Paige chose to become Chrissie鈥檚 donor, but Chrissie had no choice in the matter. 鈥厂丑别鈥檚 on a lifelong journey,鈥 Paige says. 鈥泪迟鈥檚 my honor to have been part of i迟.鈥

Living donors like Paige tend to be problem-solvers who leap into action when a loved one needs help, Dr. Samstein says. 鈥淭hey also have a high degree of empathy. They feel connected to others in a deeper way, and that motivates them to share what they have鈥攊n Paige鈥檚 case, a lot of life energy and a healthy liver鈥攖o enable others to live. We call that everyday heroism.鈥

Rejuvenation and renewal

As Chrissie was receiving her new liver, more than 30 people gathered in the waiting room鈥攎embers of both Chrissie鈥檚 and Paige鈥檚 extended families. Her surgical team thought they were having a party!

鈥淚 felt great after surgery,鈥 she says. 鈥淚 was up and walking around in no time, and I was discharged 3 days earlier than expected.

During their respective recoveries, Chrissie and Paige made regular dates to get together, share their experiences and bond as usual. And their relationship has grown even stronger since then.

鈥淭hrough it all, my family has been extraordinary,鈥 Chrissie says, from her sons, Joseph and Andrew, to her 2 stepchildren and her husband, who stepped into the role of cook and housekeeper without missing a beat. He did an amazing job of taking care of me for 3 months,鈥 after which she went back to work as a professional lobbyist.

鈥淢y hair is gorgeous now,鈥 she grins. 鈥淎fter all, I have a 25-year-old liver!鈥澨

Chrissie takes 2 anti-rejection pillsone in the morning and one at night. These medications are her main tangible reminder of what she has been through.

Per Weill Cornell 惭别诲颈肠颈苍别鈥檚 requirements, she also checks in with her transplant team once a year鈥攎ainly with Dr. Brown. Soon, though, 蝉丑别鈥檒濒 mainly follow up with her primary care physician for routine check-ups to make sure she stays healthy.

The great new development in Chrissie鈥檚 life came when she decided to join the board of Donate Life New York State鈥攁 nonprofit organization dedicated to increasing organ, eye and tissue donation in New York State. 鈥The work is extremely rewarding. And it was my transplant that led me to i迟.鈥

See a brief video about Chrissie and Paige .To connect with the liver transplantation services team at 五月天视频, please visit here to learn more.